savoy066

I have found it to be very challenging to be in this new situation I have created for myself.  I have had a lot of painful cramping from fluid I guess.  I am constantly wondering if my new drugs are working or not.  I can't really find out for sure until August.  I am hoping that I am not experiencing worse symptoms before August like needing to get drained or something worse.  I have started sleeping in the recliner again.  I had to do this a year ago when I was really sick again and had so much fluid I couldn't lay down.  I have some back/leg pain that I am not sure where it is originating.  Not sure if it has anything to do with the fluid since I also experienced this same pain last year when I had all the fluid.  We are trying to go on vacation in a few weeks so I really hope we can go on our trip as planned. I constantly go back and forth in my head thinking that what I'm doing is working and I will be cured and I can use my bl...

I had my drs apt today.  My tumor markers are good, not elevated at all.  I had an ultra sound done, they saw a little bit of fluid.  I have some cramping from it.  I don't feel as though the fluid means anything.  The method im using requires a slow steady increase of the medication.  I feel like even there is fluid it is just because I don't have enough of the meds in me yet.  Being hopeful anyway.  We have a scan scheduled for Aug 8 and hope to see dr to discuss on aug 11. I was able to go away on vacation a few weeks ago and I have another one coming up in a few weeks.  I feel like I'm really going to enjoy summer!  So appreciating the sun!! I am feeling good.  I am still running, and enjoying time with the kids.  Right now my mom, brother and dad are here.  We are enjoying time together and having fun!