chemo tomorrow

I didn't receive chemo yesterday because I had a parent orientation for my daughter going to kindergarten next year.  Because dana farber is so awful and busy they couldn't get me in until wednesday.  So I will hope to be reporting shortly after tomorrow about how good I feel because I didn't get the irinotican!  Let's pray on that one!

Comments

Post a Comment

Popular posts from this blog

Leah the prankster

[read this post to see what the memory sharing is all about]  At the end of Leah's memorial service on Friday March 27 at the Atlantic Beach Club, there was time to publicly share Leah-memories. Leah's friend Sarah McLean lives in Los Angelos, California so she recorded this video that was shared on the projector that day. The text version is below for those who can't watch the video. My name is Sarah Mclean, also known as "TV Sarah", and I worked at SEA CORP for 6 years alongside Leah. I wanted to share this memory with you all. I don’t know if this is common knowledge,but Leah was quite the prankster and practical joker. In fact,I didn’t know this side existed until I found myself on the receiving end. Well into my friendship with Leah, long after she had transitioned from just a “work friend” to a real friend, I got her and Bryan hooked on a TV show called ‘Veronica Mars’, about a sassy teenage private investigator. In 2008, a year after the show had ende...
Read more

It's been a year since Leah passed away, on March 23rd, 2015

Image
It's been a year since Leah passed away, on March 23rd, 2015, and yet, still it seems unimaginable she's no longer here. Time has passed slowly, time has passed quickly, but she remains in our hearts forever. Leah recorded videos of Elly as a baby and uploaded them to her public photobucket account. These have been on the web since she's posted them, perhaps you've come across them if you googled her name. Now all 56 of her videos are combined in a single 36 minute video I've posted on YouTube (see embed below). Together they piece together a beautiful slideshow through Leah's eyes, of experiences with her first child Eliannah. Watch and you will see, what Leah's friend Kim said when viewing these "She was such an amazing mom and so in love with her kids". While the grief of her loss is raw while watching her recordings, you may find it's cathartic and what our cousin Rachael said was nice to "hear Leah's voice and laugh". I think...
Read more

Guess what I'm not doing today!?

So today would normally be a chemo day for me.  I get nauseas just thinking about it, and hearing the word "chemo", but alas, I am not driving to Boston today, I am packing!  I booked my balloon ride for Thursday, it's bright and early 5am, so you east coasters can think of me and bryan flying at 8am, I can't wait to share photos! I was able to spend some time yesterday with a friend of mine who is going through a clinical trial for ovarian cancer.  Her trial seems very similar to the one I am interested in and is also done at Mass General.  It is just taking two different kind of drugs in pill form that are designed to stop cancer cell growth.  She seems to be doing well and I won't forget her words that gave me a feeling of relief.  She does have side effects from the drugs that aren't pleasant but she said "it does feel like a break from chemo."  And the good news is her trial shes on seems to be working! We leave tomorrow and as Elly says, "...
Read more